Regional Organizer | Family Voices of Tennessee
Sara is a Regional Organizer for Family Voices of Tennessee, a program where all staff members are parents of children with special healthcare needs, chronic illness, and/or disabilities. Both of Sara’s children, now teenagers, were born with developmental disabilities-the younger of the two also has progressive heart disease. Seventeen years of advocating for their needs and managing their care informs the approach she takes to working with other parents. Sara is part of a team working to develop an informed consumer voice in Tennessee’s healthcare systems. She coaches two distinct groups of caregivers in systems-level advocacy: those navigating the 3 year old MLTSS program, Employment and Community First CHOICES, and those advocating for the creation of a dedicated Katie Beckett program.